Making sense of the complexities of Usher syndrome.

Usher syndrome is a rare, inherited genetic condition that causes combined hearing and vision loss. It affects an estimated 400,000 people worldwide and is sometimes referred to in the medical literature as Hallgren syndrome. Usher syndrome is a leading cause of deaf-blindness. While there is currently no cure, ongoing scientific advances are expanding our understanding of the disease and driving research that may one day lead to meaningful treatments.

Because understanding matters for patients, families, and everyone navigating life with Usher syndrome.