We distill the complexities of Usher Syndrome into simple, digestible concepts.

Usher syndrome is a rare, inherited genetic disease characterized by combined hearing and vision loss. It affects approximately 400,000 people worldwide and is also known as Hallgren syndrome. This disorder is a major cause of deaf-blindness. While Usher syndrome is currently incurable, recent scientific discoveries have led to promising research that may one day lead to a potential treatment.